We have had much success in the past with our Food Allergy & Anaphylaxis Awareness Days in Albany, and another one is scheduled for May 3. We set up a table in the concourse entrance to the Legislative Office Building and speak to every legislator that walks by. When we have families join us it adds much validity to our cause as it hits home how allergies can affect anyone’s everyday life. Below are some of the legislative initiatives we are supporting this year. Call or write if you would like to join us!
By Jon Terry March 14th, 2017
Greetings from Jon Terry, the founder of the Allergy Advocacy Association. Concerning anaphylaxis, life-threatening allergies and epinephrine, important legislation is again being proposed during the current session of the New York State legislature. Under consideration are new laws for anaphylaxis emergency school teacher training; restrictions upon pharmaceutical pricing policies and protecting families with food allergies when they dine out at restaurants or fast-food service vendors.
Local allergist Dr. Shahzad Mustafa has been closely monitoring clinical trials for a new peanut patch that would help decrease the risk of an allergic reaction after accidental ingestion. Worn on the back or the inside of the upper arm, there were very few side effects in a recent study except for mild skin irritations. After 1-2 years of using the patch, close to 50% of the 74 participants saw a 50% improvement in peanut tolerance. DBV Technologies hopes to have the product approved by the Food and Drug Administration and marketed by 2018.
The Viaskin peanut patch: Will it help prevent Anaphylaxis?
By Janet Goldman
February 11th, 2017
DBV Technologies has been developing the Viaskin Peanut Patch, a new method for preventing anaphylaxis. If used appropriately, the patch can increase tolerance to peanuts. The patch helps peanut allergic individuals who accidentally ingest or are accidentally exposed to peanut protein. Through immunotherapy, the patch can help prevent symptoms from an accidental exposure. However, even with a patch, users should still always carry epinephrine and strictly avoid peanuts.
The deaths of young adults from anaphylaxis is a major concern for our association. We need national leadership on this issue. Who better than one of the most prominent public figures with peanut allergy in that age group. That is why Jon Terry has asked Malia Obama for help.
An Open Letter to Malia Obama
By Jon Terry January 13, 2017
Dear Ms. Obama;
Greetings. I sincerely hope you and your family are doing great and looking forward to a happy and prosperous new year. And also that you are successfully managing your health particularly your allergy to peanuts.
As we wind up yet another year, it’s the perfect time to sit back and reflect on all that has been accomplished in 2016. But of course nothing would have been possible without the hard work and support we receive every day from so many in our community. Here’s our founder Jon Terry’s list of people and organizations that have been especially helpful this past year in reaching our ongoing vision of “Not another life lost to anaphylaxis - not another life lost ANY life-threatening allergies!”
Big Jon's Allergy Advocacy Association Holiday Gratitude List
By Jon Terry December 7, 2016
Happy Holidays! I sincerely hope all of our readers have had a great year and are looking forward to 2017. At this particular time of year it is a regular occurrence for individuals and organizations to offer up gratitude lists of various sorts. Most lists recount events from the past year that were particularly hopeful or meaningful. That is pretty much what I want to share with all the supporters and affiliates of the Allergy Advocacy Association. I firmly believe that we do have a lot to feel grateful about. Please see my “thank you” list below.
Did you know there is a less expensive alternative to Mylan’s EpiPen? A generic epinephrine auto injector of another brand called the Adrenaclick, it has been on the market since 2013. The cash price is as much as $430 cheaper than the EpiPen. But it’s important that your doctor write the prescription in a certain way or the pharmacist won’t be able to fill it with the less expensive brand. The prescription should say “‘the generic epinephrine auto injector,” not “EpiPen or generic equivalent.”
BOSTON – Diagnosed with a severe peanut allergy, one wrong bite could be deadly for 10-year-old Dylan Frazier of Duxbury. That’s why his mom, Kristen, keeps EpiPens everywhere. “We keep one in the cafeteria. We also keep one in the classroom and in the sports bag,” she said.
The Fraziers’ insurance doesn’t cover the cost of all those extras, so they end up with hundreds of dollars in out-of-pocket costs just have that peace of mind.