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UPDATE: Allergy Safety on NYS School Buses

As the school year comes to an end, it’s the perfect time to focus on ways to keep children with allergies safe on school buses, so we can be all ready to roll in September. We are pleased to report that legislation allowing school bus drivers to administer epinephrine in an emergency was passed by houses of the New York State legislature. Now the bill will be sent to Governor Andrew Cuomo for consideration and (hopefully) enactment. Please support our efforts by contacting him directly to sign the bill.

UPDATE: Allergy Safety on NYS School Buses

Kids Getting On School Bus
Photo by Daniel Hurst

By Kristen Stewart
June 21st, 2017

Good news from Albany!

School busses are two steps closer to being safer for children who suffer from life-threatening allergies thanks to the passage of Assembly Bill A07635 sponsored by David Buchwald and Senate Bill S06005 sponsored by Terrance Murphy. The bill would allow employees of companies that provide transportation for NYS school districts to be able to administer an epinephrine auto-injector in emergency circumstances.

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A Mother Pushes for Allergy Safety on NYS School Buses

What would happen if a child got stung by a bee or ate something he or she was allergic to on a school bus? When every minute counts during an attack of anaphylaxis, a bus driver trained to administer epinephrine could literally save a life. Fortunately, thanks to the efforts of one mother, legislation is being proposed in New York State that would allow employees of companies that provide transportation to be able to administer an epinephrine auto-injector in emergency circumstances.

Stacey Saiontz with her sons Jared and Elliott
Stacey Saiontz with her sons Jared and Elliott

A Mother Pushes for Allergy Safety on NYS School Buses

By Kristen Stewart
May 22nd, 2017

Stacey Saiontz of Chappaqua, New York does everything parents of extremely allergic children do. She brings her son Jared’s food to restaurants and friends’ homes. She wipes down everything from airplane seats and arm rests to playground equipment. And of course she carries Benadryl and an epinephrine auto-injector (EAI) device.

She has also taken her fight to keep her son safe one step further—all the way to the New York state capitol.

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Allergy Advocacy Association: Albany Reset

Albany Legislature building

After much consideration about where we are as an organization and how we continue the work towards our mission, we’ve decided to forgo this year’s trip to Albany. We’ll work closely with the allergy community to better understand their challenges as they manage their allergies and how we can better support them with legislative outreach and other advocacy activities.  

Issues of anaphylaxis emergency school teacher training; restrictions upon pharmaceutical pricing policies and protecting families with food allergies in restaurants are very important to our community.  We look forward to working with the Monroe County allergy community, health care professionals and NYS representatives and their staffs to support legislation to make it easy to keep our friends and family safe during an episode of anaphylaxis, no matter where they are. This information will be used to focus our attention on the right legislation as we continue our work in Albany next year.

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Announcing our Albany Allergy Awareness Event

We have had much success in the past with our Food Allergy & Anaphylaxis Awareness Days in Albany, and another one is scheduled for May 3. We set up a table in the concourse entrance to the Legislative Office Building and speak to every legislator that walks by. When we have families join us it adds much validity to our cause as it hits home how allergies can affect anyone’s everyday life. Below are some of the legislative initiatives we are supporting this year. Call or write if you would like to join us!

A3 Staff and Friends In Albany 2016

By Jon Terry
March 14th, 2017

Greetings from Jon Terry, the founder of the Allergy Advocacy Association. Concerning anaphylaxis, life-threatening allergies and epinephrine, important legislation is again being proposed during the current session of the New York State legislature. Under consideration are new laws for anaphylaxis emergency school teacher training; restrictions upon pharmaceutical pricing policies and protecting families with food allergies when they dine out at restaurants or fast-food service vendors.

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The Viaskin Peanut Patch: Will It Help Prevent Anaphylaxis?

Local allergist Dr. Shahzad Mustafa has been closely monitoring clinical trials for a new peanut patch that would help decrease the risk of an allergic reaction after accidental ingestion. Worn on the back or the inside of the upper arm, there were very few side effects in a recent study except for mild skin irritations. After 1-2 years of using the patch, close to 50% of the 74 participants saw a 50% improvement in peanut tolerance. DBV Technologies hopes to have the product approved by the Food and Drug Administration and marketed by 2018.

The Viaskin peanut patch: Will it help prevent Anaphylaxis?

Viaskin Peanut Patch

By Janet Goldman
February 11th, 2017

DBV Technologies has been developing the Viaskin Peanut Patch, a new method for preventing anaphylaxis. If used appropriately, the patch can increase tolerance to peanuts. The patch helps peanut allergic individuals who accidentally ingest or are accidentally exposed to peanut protein. Through immunotherapy, the patch can help prevent symptoms from an accidental exposure. However, even with a patch, users should still always carry epinephrine and strictly avoid peanuts.

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