Summer greetings! Your Allergy Advocacy Association is busier than ever this time of year, as we have more opportunities to help kids stay safe at summer camp and to educate the public at various events. It seems like every June we have something to celebrate as far as getting legislation passed, and this year will be no exception. Read all about passage of a bill allowing school bus drivers to administer epinephrine, as well as the current status of keeping safe from allergens while dining in restaurants. And while you’re staying cool in movie theaters this summer, be sure to check out Richard Gere’s new movie where he plays a man with a peanut allergy.
As the school year comes to an end, it’s the perfect time to focus on ways to keep children with allergies safe on school buses, so we can be all ready to roll in September. We are pleased to report that legislation allowing school bus drivers to administer epinephrine in an emergency was passed by houses of the New York State legislature. Now the bill will be sent to Governor Andrew Cuomo for consideration and (hopefully) enactment. Please support our efforts by contacting him directly to sign the bill.
UPDATE: Allergy Safety on NYS School Buses
By Kristen Stewart June 21st, 2017
Good news from Albany!
School busses are two steps closer to being safer for children who suffer from life-threatening allergies thanks to the passage of Assembly Bill A07635 sponsored by David Buchwald and Senate Bill S06005 sponsored by Terrance Murphy. The bill would allow employees of companies that provide transportation for NYS school districts to be able to administer an epinephrine auto-injector in emergency circumstances.
When Central New York native Richard Gere appears in a new movie, it’s reason enough to cause excitement. But those with life-threatening food allergies will be particularly pleased to see that epinephrine plays a major part in the plot. Our founder, Jon Terry, gives us a preview of the film, without giving away the dramatic ending!
Movie Review: Richard Gere as “Norman”
By Jon Terry June 16th, 2017
When I founded the Allergy Advocacy Association seven years ago, I knew I would have to open myself up to any number of new experiences. Why did I decide to do this? Because I was determined to do whatever it takes to raise awareness of the dangers of anaphylaxis. Before January 2011, Web sites, newsletters, power point presentations, public events, and allergy conferences never entered my mind. To become an effective public advocate I would have to talk with many different kinds of people, develop better interpersonal skills, travel to new places, improve my IT network, etc. I think that a good public advocate must be articulate, polite, a good listener, patient, open-minded, and persistent. And I would like to think that I have learned how to do at least some of these new things well.
Restaurants are on the front lines in the battle to prevent anaphylaxis. Every three minutes a food allergy reaction sends someone to the emergency room, and most deaths due to food allergies are triggered by food consumed outside the home. Patrons of restaurants can’t always be sure the food they order does not contain allergens. In this article, Ishani Nath interviews top chefs, food safety experts and the next generation of professionals who speak candidly about what really goes on inside restaurant kitchens and the efforts they make to keep customers safe. While an absolute guarantee is not possible, food-service attitudes and efforts are certainly evolving. You might want to also check out AllergyEats, a Yelp-style online guide for allergic consumers.
When you dine out with food allergies or celiac disease, the big question is: Does this restaurant know how to feed me safely? In this special report from Allergic Living magazine, we speak to leading chefs, training experts and the next generation of restaurant pros, to discover the true state of food allergy accommodations.
Charles Duhigg provides an eye-opening look at what really goes on behind the scenes at Mylan, the manufacturer of EpiPens. He interviewed 10 former Mylan executives who describe uncaring CEOs and how employees objected to misleading and dangerous television ads—and to the recent price gouging. We can only hope that alternatives to Mylan’s EpiPens will continue to offer some competition.
A few weeks ago, after some particularly incompetent parenting on my part (nuts in the dessert, a rushed trip to an emergency room after my child’s allergic reaction), I visited the local pharmacy to fill an EpiPen prescription.