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E-Greetings from the Allergy Advocacy Association

May 2018

“Neither snow nor rain nor heat nor gloom of night”….Well, we didn’t face all these weather conditions during our advocacy event in Albany on May 16, but we did have tornado warnings, high winds and downed trees. But nothing can stop the Allergy Advocacy Association! We had 30 volunteers from FARE and 12 from our association including two doctors. With a couple of media events featuring new faces and stories to share with lawmakers, we had very effective meetings to discuss legislation with members in both houses. Stay tuned for our June newsletter to hear more details from the event, but in the meantime article four includes some great publicity we got in www.allergicliving.com about the bills we are currently trying to get passed.

If you can help here is a reminder of a research opportunity:

If you are pregnant or just had a baby, The Department of Pediatrics, Division of Allergy and Immunology at the University of Rochester Food Allergy Center is looking for a study participant just like you! For more information please call 585-275-8991 or visit https://www.urmc.rochester.edu/childrens-hospital/allergy/food-allergy-center.aspx

Jon Terry
Founder, Allergy Advocacy Association

Announcing Epi Near You New York

Help us spread the word about our Epi Near You New York program. Recently approved by New York State, we will provide training to any restaurant, summer camp or daycare center on when and how to administer epinephrine. Plus, we will give them a non-patient-specific (NPS) prescription, which can be filled at any pharmacy in New York. And for 501(c)(3) organizations, the Allergy Advocacy Association will even provide a payment voucher for an epinephrine auto injector, at no cost to the owner. We hope you will help us save lives!

Epi Near You New York

By Staff
May 14, 2018

The Allergy Advocacy Association is very pleased to introduce Epi Near You New York, an educational program to help Monroe County’s small businesses keep their customers safe. This program will enable businesses to stock and administer epinephrine to those who are not carrying their Epinephrine Auto-Injector (EAI) device or weren’t aware of their allergy, leaving them at risk for an attack of anaphylaxis.

Our training program is available to businesses which serve the public, offering food or providing exposure to other possible allergens. These businesses include a wide range of categories such as restaurants, summer camps, and daycare centers. After taking our NYS approved training program, businesses will receive a certificate and a non-patient-specific (NPS) prescription, which can be filled at any pharmacy in NYS. Additionally, the Allergy Advocacy Association will provide a payment voucher for 501(c)(3) organizations.

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SnackSafely.com: Your Guide to Allergy-Safe Foods

If necessity is the mother of invention, we can thank the Bloom family for bringing us SnackSafely.com. Their daughter is allergic to both eggs and peanuts, so to help her stay safe at school, Debra Bloom created a list of allergy-friendly snacks to give to the school and other parents. To the family’s surprise, in the first three months the site was downloaded by thousands of people and last year over a million visitors found the frequently updated list to be very helpful. Dave Bloom now provides content for the site full-time, which includes a blog on the latest research discoveries and treatment options. Please read the full article here.

Dave and Debra Bloom with their daughters
Dave and Debra Bloom with their daughters

Interview with Dave Bloom, founder of SnackSafely

By Kristen Stewart
May 1, 2018

When her daughter, who was allergic to both eggs and peanuts, started school in 2006, Debra Bloom created a list of allergy-friendly snacks to give to the school and other parents in an effort to prevent cross-contact in the classroom. She and her husband Dave thought they were making efforts to keep their daughter safe. Little did they realize they were in the early stages of starting SnackSafely.com, a site that last year had over a million unique visitors.

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In Tragedy’s Wake, New York Preschool Staff Get Food Allergy Training

Unfortunately, it sometimes takes a tragedy in order to generate action to prevent anaphylaxis in any child. After the death of three-year-old Elijah Silvera at a daycare center in New York City, The Administration of Children’s Services (ACS) pledged to do more training in preschools, and FARE offered to help conduct food allergy training for workers who care for young children in childcare settings. The training will be conducted both in person and online, and can serve as a model for other cities.

Elijah Silvera at his best.
Elijah Silvera at his best.

In Tragedy’s Wake, New York Preschool Staff Get Food Allergy Training

By: Nicole Smith
in Food Allergy News

Following the tragic death of Elijah Silvera, a 3-year-old who had an anaphylactic reaction at preschool, a comprehensive training program has begun in New York City in hopes that food allergy education will help to protect kids and prevent tragedies.

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Advocates Lobby for NY Food Allergy Bills

The Allergy Advocacy Association and FARE received some nice publicity from AllergicLiving.com after our recent advocacy event in Albany on May 16. Read all about the various bills in front of the New York State legislature that we are hoping to pass in the very near future. Two proposals are in memory of children who have died as a result of food allergies.

Advocates Lobby for NY Food Allergy Bills

Left to right: Parent Georgina Cornago Cipriano, parent Frank Frangella, Assemblywoman Melissa Miller, parent Cathee Frangella, Jon Terry of the Allergy Advocacy Association, Dr. Kirsi Jarvinen-Seppo of the University of Rochester, Jennifer Jobrack of FARE, Assemblyman Al Taylor, parents Dina and Thomas Silvera & Assemblyman Thomas Abinanti.

From Preschool Allergy Policies to Auto-Injector Access

By: Allergic Living
in Food Allergy News
May 16, 2018

Advocates, including parents who have lost children to anaphylaxis, were in Albany, NY on May 16 to raise support to several food allergy related bills that are proposed for the New York Assembly and Senate in relation to food allergies.

The non-profit Food Allergy Research and Education (FARE) and the New York State group the Allergy Advocacy Association organized the day.

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