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E-Greetings from the Allergy Advocacy Association

October, 2016

Autumn greetings! We hope you are enjoying all that this beautiful season has to offer. Once again we give our warning to be extra vigilant on Halloween if your child has any food allergies. Tell them that nothing can be eaten until you have had the chance to go through their items at home. (See article 4 for some great Halloween candy suggestions and warnings.) And we don’t know if this idea has taken off in your area or not, but the Food Allergy Research and Education Organization (FARE) is asking everyone to display a teal colored pumpkin to indicate you are handing out allergy-free treats. (Read more here.) You can even order a conversation-starting sweatshirt that says “Teal is the new orange.” As one mother said, “I’d like to say thank you to all who take time to put a teal pumpkin out and get allergy free treats. From a mom with a child that has food allergies, I’d just like you to know how much it means to know people care!

We hope we can count on your support as we launch our Remembering Ruthie With Epi Everywhere fundraising campaign. See below for more details as we look back on all that has been accomplished with your help during the past few years. 

Remembering Ruthie With Epi Everywhere

In memory of Jon Terry’s sister Ruthie, we are launching our first major fundraising campaign in order to help protect those with life-threatening allergies. We’ve already seen results in saving a life thanks to a donation of epi-pens we made to the local Boy Scouts Association last summer. Will you help us continue our important work?

Remembering Ruthie With Epi Everywhere

Ruthie Cornell

By Jon Terry & Suzanne Driscoll
October 14th, 2016

As many of you probably know, my sister Ruthie Cornell died of anaphylaxis as a result of a bee sting seven years ago. Ruthie was a life-long, avid gardener, but she didn’t know she was allergic to bee stings. Had epinephrine been on hand via an epi-auto-injector (EAI), she would still be alive. Ruthie would have been 60 years old on May 18 of this year and I miss her every day.

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Check and Inject Program Final Report

We have an important update on the Check & Inject NY project where EMTs are trained to use a syringe rather than the more expensive epi-pen to administer epinephrine. The final report of the trial program found “a significant increase in understanding of anaphylaxis and the role of epinephrine.” With 500 agencies now enrolled, cost savings are projected to be over $400,000 per year. The State Emergency Medical Advisory Committee has approved the project and it is just waiting for final approval from the state health commissioner.

Check and Injest Training Kit

NYS EMS Awaits Decision by Health Commissioner

By Janet Goldman
October 12, 2016

Efficient, effective and economical! With New York State’s Check and Inject Program, Dr. Jeremy Cushman, Emergency Medical Services (EMS) Physician and Medical Director for the Monroe Livingston Region, has demonstrated how ambulances can efficiently and effectively meet the needs of those with severe allergies. With special training procedures, this demonstration program has shown the benefits of enabling emergency medical technicians (EMTs) to administer epinephrine with a special syringe instead of an epinephrine auto injector (EAI).

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Buying Epi-Pens™ in Canada: What You Need to Know

With the skyrocketing costs of epi-pens, many people are considering ordering them from pharmacies in Canada just like some do for other prescriptions. One mother obtained them at half the cost compared to prices in the U.S. This article also provides some helpful Websites so you can check to make sure the pharmacy you are ordering from is licensed. The question remains, why can the Canadian government negotiate price caps or lower prices with the manufacturers while in the U.S. drug companies set whatever price they want?

Parra Kids Between US and Canadian Flags
L to R: Dominic, Adam, Cameron and Joshua Parra.

Families Search for Lower-Cost Alternatives North of the Border

By Kristen Stewart
October 12th, 2016

We’ve all heard the numbers when it comes to the cost of the Epi-PenTM. Perhaps the only thing more shocking than the price jump of more than $500 in just eight years is the fact families are expected to pay over $600 for this life-saving medicine.

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How to Navigate Around Food Allergies This Halloween

Here are some very practical tips on what to hand out for treats this Halloween. Included are some allergens you might not expect to find in common candy brands, and some suggestions for allergen-free candy or other non-edible items you might give instead. Time to get out that teal paint!

Bowl Filled with Halloween Candy
Photo © Brent Hofacker - Fotolia

Keep kids with food allergies safe by opting for allergen-free treats

By Sarah D. Young
October 11th, 2016

If you’re a parent to a child with a food allergy, there’s more to the task of sorting through the night’s Halloween candy haul. In addition to making sure that no suspicious looking candy found its way into your child’s bucket, you may also have to weed out candy that could trigger an allergic reaction.

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