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E-Greetings from the Allergy Advocacy Association

September, 2016 

Allergies have certainly been in the news lately, with Mylan Pharmaceuticals being called on the carpet to explain their numerous price increases on EpiPens® during the past seven years. We are pleased to see the attention this issue is getting, with the result being a lower priced generic version soon to be offered.

We would like to request your help in answering some questions for a new research survey. The protection and care of allergic children in schools are serious issues for individuals and families at risk for anaphylaxis. An organization affiliated with us is conducting a survey designed to expand our knowledge base—with new data we can then better serve our community of activists and advocates. You can find the survey online here:
Northwestern University Survey for Parents: School Food Allergy Policies

We are also asking for your help by signing on-line petitions located on our Website.

Here are two new ones for you to consider:

  1. Call on Mylan Pharmaceuticals to Reduce Price of Life-Saving EpiPen
  2. Stop the EpiPen Price Gouging

Meanwhile, have a safe and happy school year!

Scoutmaster Survives Life-Threatening Hornet Sting

Seneca Waterways Council logo

The Allergy Advocacy Association is very proud to have played a part in saving the life of a local man serving as a volunteer scoutmaster at a Boy Scout camp. We hope to expand our donation of EpiPens program in the coming year, to help avoid any potential tragedies while kids and adults are out exploring the wilderness.

A3 comes to the rescue at local Boy Scout camp

By Suzanne Driscoll
September 8, 2016

Scoutmaster Kevin Hill knew he was in trouble. Even though he had been harmlessly stung by a bee about 30 years ago, he was having an attack of anaphylaxis after a hornet stung him while he standing down by the waterfront at a local Boy Scout camp. The camp medical officer was called and Kevin was given a shot of epinephrine right away. His symptoms improved and when an ambulance arrived about 15 minutes later, the EMTs decided Kevin didn’t need a second injection before transporting him to the hospital.

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Syringe & Vial or Epi-Pen®?

epinephrine syringe and EpiPen images
(L) Photo by Carlos Ortiz D&C Staff Photographer
(R) Photo by Greg Friese @ Flickr

With the skyrocketing price of EpiPens® along with employers continuing to offer only high deductible health plans, alternatives such as a syringe and vial have been suggested. The Allergy Advocacy Association decided to conduct an informal survey of four allergists from the Rochester, NY area and four consumers from the Buffalo/Brooklyn/Chappaqua areas regarding this alternative. The results show they all shared similar concerns.

Safety and Usability of Epinephrine Syringes for Consumers

By Janet Goldman
September 7th, 2016

PURPOSE OF SURVEY

With the escalating costs of epinephrine auto-injectors, consumers have been seeking alternative solutions. Some families have turned to the generic form of Adrenaclick, produced by Impax Laboratories. This alternative is significantly less expensive than the EpiPen®. However, many allergists prefer to prescribe the Epi-Pen® due to their known reliability. Some families in western New York have sought solutions by shopping across the border. When traveling to Canada where medication prices are regulated, consumers have found Epi-Pen® prices to be drastically reduced. Saddled by budget constraints, some families have begun to replace the auto-injectors with a very different alternative, a needle syringe and vial.

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Consumers Seeking Alternatives to Epi-Pen®

EpiPen 2-pack
Rich Pedroncelli/Associated Press

As the outrage over the price of EpiPens continues, Patricia Sabatini offers some practical alternatives such as buying them in Canada or trying a generic version of the former Adrenaclick brand. She also discusses alternatives to avoid such as going online or using a syringe and vial. Hopefully a new, lower priced generic version of the current EpiPen® will be available soon.

As consumers look for more affordable solutions to the rising price of the EpiPen, the increased cost has brought scrutiny by lawmakers and a public backlash for Mylan.

Consumers Seeking Alternatives to Epi-Pen®

By Patricia Sabatini
September 7, 2016

The firestorm surrounding the spiraling price of Mylan’s EpiPen® is fueling interest in lower-cost alternatives to the emergency allergy treatment, including a lesser-known but similar auto-injector that has been on the market since 2013.

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Milk Allergy at School

Kids at School Lunch Table

If your child has a milk allergy, here are some very practical tips for helping them to be safe at school. The main message is to get teachers, other parents, your child’s friends and the school nurse involved, and plan strategies ahead of time so your child doesn’t feel left out when it comes time for pizza and ice cream celebrations.

Milk Allergy at School

By Alisa Fleming
August 30, 2016

This post is sponsored by So Delicious Dairy Free. They asked to be a part of providing helpful milk allergy information for back to school.

High Risk Dairy Foods & Situations

Below are five high risk dairy foods and situations that occur quite often in most school settings. I’ve included an explanation of the challenges along with some ideas to help you and your milk allergic kid navigate this milk minefield.

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