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Welcome to Allergy Advocacy

Welcome to the Allergy Advocacy Association website.  We are here to help better serve any individuals concerned with issues relating to allergies and anaphylaxis.

A Warning Bell will Ring in my Head!

Joy and Trevor Leinenbach; March, 2018

Trevor Leinenbach is doing an excellent job in managing....
Read the article here.

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Allergies come in all shapes and sizes ...

Just like allergy sufferers. And they are on the rise. For many people allergies can range from sniffling and sneezing to skin rashes to gastrointestinal issues. A certain percentage, however, have more than these uncomfortable symptoms to deal with. Anaphylaxis, a serious life-threatening reaction, causes approximately 1,500 deaths a year in the United States alone. Clearly, allergies are nothing to sneeze at!

Articles for Advocacy

Your Allergy Advocacy Association continues to recommend that “when in doubt, take it out.” This article discusses a report by Blue Cross Blue Shield that found the number of severe allergic reactions in children reported by hospitals have more than doubled between 2010 and 2016. The article includes signs and symptoms to look for in an impending anaphylaxis attack and suggests “If you think about using an EpiPen, go ahead and use it if you notice any of these signs and symptoms.” Most importantly, Dr. Anna Volerman of the University of Chicago Medicine says to make sure that your child has “a really strong understanding of the allergy, and feels comfortable speaking up and saying, ‘I’m allergic to X, is there any X in this food item?’”

Life-Threatening Allergic Reactions Rising in Children

Hands Holding Two EpiPens Together
Photo Credit: Andrew Mangum for The New York Times

By Perri Klass, M.D.
APRIL 9, 2018

Anaphylaxis is the scary end of allergy, the kind of reaction that can kill. It can happen almost immediately after the exposure — being stung by the bee, eating the peanut — and it can move fast. In anaphylaxis, your immune system turns against you with a vengeance, revs up and releases histamines and other chemicals that set off a range of dangerous physiological changes.

Read the article here.


The good news is that a recent survey found 81% of school nurses stock epinephrine to use in an emergency for any child. The bad news is epinephrine was much less likely to be available for after-school activities or for travel with student groups outside of school. This is especially concerning since up to 19 percent of anaphylactic reactions during the school day may occur outside of the school building or on field trips. Whenever your child is scheduled for outside activities, make sure they have their own EpiPen with them and speak with chaperones and coaches so they know what to do in an emergency. An EpiPen should be available for use on anyone, as many are not even aware they have an allergy, such as to bee stings. School nurses also reported that allergen labeling could be improved for school lunches.

Are Schools Ready for Severe Allergic Reactions?

Study Sees Key Gaps

School Nurse
Photo Credit: Istock

By: Mariam Matti
April 4, 2018

A majority of school nurses report being trained to handle severe food allergy reactions, and most have stock (or unassigned) epinephrine available as a tool.

Underscoring the importance of those factors, a national survey of school nurses reveals that one-third of the nurses had to deal with at least one severe reaction in the past year.

Read the article here.


It’s that time of year again! If you plan to send your child to summer camp, there is much research to be done. The author of this article suggests you make an in-person visit to the camp and to not go by “just what they say, but what you see and even how you feel” in order to choose the right camp for your child. She also provides some excellent questions to ask before you sign your child up for a camp.

Last summer a volunteer counselor at a local Boy Scout camp got stung by a hornet, and had no idea he was allergic. If an EpiPen had not been on hand, the results could have been devastating.

Advice on Attending Summer Camps with Food Allergies

Kids At Camp With Sailboat
Photo Credit: Istock

By: Gina Clowes
Originally published July 19, 2016,

Follow these tips to research safe adventures for your allergic child.

From daytime activities to sleepaway journeys, summer camp can create lifelong memories and give parents a brief respite. Of course, adequate planning is essential when food allergies are on the table, but sometimes simple observation and a mother’s intuition play an even bigger part in assessing the safety of a situation.

A few years ago, my friend Jill began searching for a camp that could accommodate her daughter Maya’s multiple food allergies. She engaged in conversations with various camp directors, but still had reservations. Despite their assertions, Jill knew in her gut that these camps were not prepared for a child with severe food allergies.

Read the article here.




The information provided on this site is in no way intended to be a substitute for medical advice,
diagnosis, or treatment with a licensed physician.
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