Family Food Allergy Foundation Memorializes Elijah-Alavi

Elijah-Alavi

The parents of three-year-old Elijah-Alavi were devasted by the loss of their son. While at preschool, Elijah, who had food allergies including dairy, was mistakenly given a grilled cheese sandwich. He suffered a fatal attack of anaphylaxis. From that tragedy Elijah’s parents embarked on a path of advocacy and education, so that other parents wouldn’t have to experience the same heartbreak. They founded the Elijah-Alavi Foundation, which includes “Elijah's Echo,” an initiative raising awareness of food allergies and anaphylaxis.    Read the article here.

E-Greetings from the Allergy Advocacy Association, June 2016

E-Greetings from the Allergy Advocacy Association

June, 2016

Summer greetings! We are pleased to announce we will once again be joining the Rochester Red Wings for FOOD ALLERGY AWARENESS DAY at Frontier Field on Sunday, July 31st at 1:35pm. We will dedicate a new ‘Peanut Aware Section’ of seating and passing out information to help educate the public on how we can all play a part in keeping those with life-threatening allergies safe.

On that note, if you see anyone showing the following symptoms they may be experiencing anaphylaxis:

  • Hives, itching and/or skin redness
  • Swelling of the tongue, lips or throat
  • Breathing difficulty, wheezing or coughing
  • Stomach cramps or vomiting or diarrhea
  • Feeling faint / drop in blood pressure (If only this 1 symptom, it is still anaphylaxis.)
  • High anxiety or feelings of mortal peril.

When in doubt, play it safe and call 911. Try to find out if the person carries an epi-pen and administer it. If he or she is not breathing, start CPR and continue until help arrives.

Read on for some wonderful news about the Emergency Allergy Treatment Act!

Graduating With a Diploma in Food Allergy Life

As her son with multiple food allergies and asthma graduates from high school, a mother reflects on all the trials and tribulations she and her family experienced in their quest to keep him safe throughout his school years. “Our solution was to simply push forward by learning, communicating and offering as much support as humanly possible,” recalls Caroline Moassessi.

Graduating With a Diploma in Food Allergy Life

Cyrus Moassessi
Cyrus Moassessi (Daily Blessings Photography)

By Caroline Moassessi
May 30th, 2016

My nails will be painted. I will sit up tall in the white wooden chairs used only for special occasions, as I fiddle with the edges of the program. The room, lined with graduation photos and decorations, will vibrate with excitement and emotion. I will resemble the other parents today. Only, I don’t know if I will feel the same as they do. They will be filled with well-deserved pride as they watch their hard-working high school seniors transition to their new lives. We will hear inspiring speeches, laugh and maybe even shed a tear or two. I won’t be thinking about my son’s future college or about how diligent he worked, this is almost secondary to me. I am not sure what feelings await me on graduation day.

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Emergency Allergy Treatment Act Passes NYS Legislature

New York State Seal

We are very happy to report that on June 3, 2016 the New York State Legislature passed the Emergency Allergy Treatment Act that allows public venues to stock and administer epinephrine in an emergency. The bill is now waiting for Gov. Cuomo’s signature. Our Association is proud of the part we played in getting this important legislation passed, and we are very grateful to those who sponsored this important legislation that will undoubtably save lives.

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Nebraska Boy Eats His First Peanut Thanks to OIT

Perry and Jennifer Haralson were determined to find a solution to their son Nicaiden’s peanut allergy rather than just avoidance. Having heard about oral immunotherapy (OIT), they traveled from Lincoln, Nebraska to Kansas City, Missouri to find a doctor with expertise in this technique that is still considered experimental. Remember, don’t try this at home without the full participation of your allergist!

The Long Road to His First Peanut

Nicadan Haralson
Nicadan Haralson, 10, considers a peanut before eating it at his home in southeast Lincoln, Neb.
(KRISTEN STREFF / JOURNAL STAR)

By CORY MATTESON
Lincoln Journal Star
May 27th, 2016

On May 23, in the kind of measuring cup that comes atop a common cough syrup bottle, Dr. Zachary Jacobs handed a boy who traveled from Lincoln to his Kansas City office a single, unsalted peanut.

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