Family Food Allergy Foundation Memorializes Elijah-Alavi

Elijah-Alavi

The parents of three-year-old Elijah-Alavi were devasted by the loss of their son. While at preschool, Elijah, who had food allergies including dairy, was mistakenly given a grilled cheese sandwich. He suffered a fatal attack of anaphylaxis. From that tragedy Elijah’s parents embarked on a path of advocacy and education, so that other parents wouldn’t have to experience the same heartbreak. They founded the Elijah-Alavi Foundation, which includes “Elijah's Echo,” an initiative raising awareness of food allergies and anaphylaxis.    Read the article here.

E-Greetings from the Allergy Advocacy Association

E-Greetings from the Allergy Advocacy Association

July, 2016

Summer greetings! We hope your plants and lawn are surviving the current drought — at least it’s nice to see the sun every day. Don’t forget our Rochester Red Wings for FOOD ALLERGY AWARENESS DAY at Frontier Field on Sunday, July 31st at 1:35pm. We will dedicate a new ‘Peanut Aware Section’ of seating and pass out information to help educate the public on how we can all play a part in keeping those with life-threatening allergies safe.

Here’s a local company that “gets it.” Once Again Corp. in Nunda, NY produces organic nut butter, and doesn’t want to risk its cashew and almond products mixing with its peanuts by mistake. So they are building a brand new production facility that will make its peanut products only. President Bob Gelser says he knows about the rising number of Americans with peanut allergies and doesn’t want customers with those allergies exposed to his other products. “With an independent production area, there’s no concern about any type of contamination.” Don’t you wish all food companies had this level of awareness and concern?

Enjoy the rest of your summer!

An Open Letter to NYS Governor Andrew Cuomo

The hard work of getting legislation passed to allow public venues to stock and administer epinephrine in an emergency was accomplished in June of this year. But it’s not over “till the fat lady sings,” as they say in baseball. Governor Cuomo has yet to sign the bill so our association is sending him the following letter. Please send the governor an email encouraging him to
Please Sign EATA Now!

 

Jon Terry, founder Allergy Advocacy Association New York Govenor Andrew Cuomo
NY Govenor Andrew Cuomo (l)
Jon Terry, founder Allergy Advocacy Association (r)

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New institute tackles the mysteries of food allergies

Never underestimate the power and determination of mothers with children who have life-threatening food allergies. Lesley Solomon of Boston decided to take matters into her own hands after her son dangerously failed a milk allergy test in his doctor’s office. She was dismayed to find out there weren’t better ways to diagnose food allergies and how relatively little was being spent on research into a life-threatening affliction. So she galvanized the help of others in the same situation, and so far they have raised $10 million to fund the Food Allergy Science Initiative at the Broad Institute in Cambridge, Mass.

Peanuts in Shells
Photo by Patrick Sison/Associated Press

The Food Allergy Science Initiative announced in Mass.

By Felice J. Freyer
June 24th, 2016

Lesley Solomon sat up all night in her son’s hospital room, reading, searching for answers. Her 6-year-old had just been rushed, gasping for air, to the emergency room after flunking a milk-allergy test in his doctor’s office.

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Letter To An Allergic Teenager

Allie Bahn
Allie Bahn

Adults can constantly remind teenagers with allergies to carry their epi-pens, but hopefully when they hear it from someone who has “walked the walk” they will listen. Here is a great letter to teenagers written by Allie Bahn who survived her teenage years by being responsible when it came to managing her allergies, even with a little rebellion mixed in.

Letter To An
Allergic Teenager...
From One Who’s
Been There!

By Allie Bahn
June 29th, 2016

Dear Allergic Teenager,

I have decided you need to hear my thoughts as an “already been there” allergic teen. At your age, I struggled to listen to older, wiser advice. But since I am not your parent, or even anyone’s parent yet, I am hoping you will be open to my words and the truth they speak – I’ve walked your walk and get it. So give me a chance before you stop reading because you think you know better! Hah, see? I was once you.

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