Family Food Allergy Foundation Memorializes Elijah-Alavi

Elijah-Alavi

The parents of three-year-old Elijah-Alavi were devasted by the loss of their son. While at preschool, Elijah, who had food allergies including dairy, was mistakenly given a grilled cheese sandwich. He suffered a fatal attack of anaphylaxis. From that tragedy Elijah’s parents embarked on a path of advocacy and education, so that other parents wouldn’t have to experience the same heartbreak. They founded the Elijah-Alavi Foundation, which includes “Elijah's Echo,” an initiative raising awareness of food allergies and anaphylaxis.    Read the article here.

E-Greetings from the Allergy Advocacy Association

August, 2016

We hope you are enjoying this hot, dry summer. We decided to further explore the issue of “People Who Rely Upon Syringes (Not EpiPens) For Administering Epinephrine” that we published in a previous newsletter. Several quoted in the article are reverting to using a syringe due to the high cost of EpiPens.

The Allergy Advocacy Association would like to publish an article in our monthly newsletter about the practicality of consumers using syringes and vials for treating anaphylaxis emergencies. The reprinted article on PBS mentioned that some allergists were following this procedure. The title is “As EpiPen Prices Skyrocket, Consumers and EMTs Resort to Syringes for Severe Allergies.”

Please see the link to the article listed below:
http://www.allergyadvocacyassociation.org/index.php/in-the-news/448-as-epipen-prices-skyrocket-consumers-and-emts-resort-to-syringes-for-severe-allergies

More specifically, we would like to share your perspective of the possible problems, and we have a list of specific questions. If you are interested, please e-mail the following address and we will make arrangements to respond by e-mail or phone.
(This email address is being protected from spambots. You need JavaScript enabled to view it.)

Please know that if you prefer, we can refer to you anonymously. Thank you for your help with this important issue in the allergy community. 

Red Wings Unveil "Peanut Aware Zone" at Frontier Field

Group photo at Redwings Game
Photo by Craig Bahr

The Rochester Red Wings will always be winners in our book. Frontier Field is now the only baseball stadium in the country (that we know of) to offer a peanut and tree nut-free seating section. Fans with these types of food allergies are very appreciative of the new seating section. You can read the full article here.

By Beth Adams
August 1st, 2016

Peanuts and Cracker Jack are part of the menu at any American baseball park, but that can be a problem for fans who have nut allergies.

The Rochester Red Wings say that's why the team is now offering a peanut and tree nut-free seating section at Frontier Field.

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After an anaphylactic shock, an Epipen saved my son in France

Arlene Harris and family

Day to day living can be dangerous enough for those with serious food allergies, but when you add international travel to the mix, it can be even more challenging. Read about an Irish mother who tried her best to keep her son safe while traveling in France, and was smart enough to administer an EpiPen when he unknowingly ate hazelnuts. 

After an anaphylactic shock, an Epipen saved my son in France

Arlene Harris recounts a terrifying moment when her son went into anaphylactic shock and argues adrenaline pens should be available in public places

By Arlene Harris
August 2nd, 2016

We have just returned from a three week tour around Europe which for the main part was an incredible experience — travelling from Rome to Madrid by train and stopping in various places along the way, it all went off without a hitch — apart from the very serious issue of a language barrier relating to a medical condition.

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Parents Want All Ambulances to Carry EpiPens

EMS van with rear doors open

Research conducted by Food Allergy Research & Education (FARE) found that not all ambulances carry epinephrine and that EMTs often don't take the person to the hospital for further observation if they appeared to be "fine now." In light of this, FARE recommends contacting your local ambulance service to ask if epinephrine is stocked in every vehicle and that at least one EMT per ambulance be qualified to administer it. In an anaphylactic emergency, inform the 911 dispatcher to send an ambulance carrying epinephrine along with a trained EMT.

Parents Want All Ambulances to Carry EpiPens

The only medication that can stop severe allergic reactions isn’t required on all emergency responder vehicles. Why is that?

By Cathy Cassata
August 5, 2016

If your child suddenly can’t breathe, most likely your instincts will move you to call 911.

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