Family Food Allergy Foundation Memorializes Elijah-Alavi

Elijah-Alavi

The parents of three-year-old Elijah-Alavi were devasted by the loss of their son. While at preschool, Elijah, who had food allergies including dairy, was mistakenly given a grilled cheese sandwich. He suffered a fatal attack of anaphylaxis. From that tragedy Elijah’s parents embarked on a path of advocacy and education, so that other parents wouldn’t have to experience the same heartbreak. They founded the Elijah-Alavi Foundation, which includes “Elijah's Echo,” an initiative raising awareness of food allergies and anaphylaxis.    Read the article here.

E-Greetings from the Allergy Advocacy Association

Autumn greetings! We hope you enjoyed the Indian summer we had in Rochester this year, and are ready to gear up for a great holiday season. I’m sure you would agree that research is the key to finding answers to the causes and treatment of food allergies. But scientists can’t do it without volunteers like you. Would you please check out this important study in our area to find out if you qualify or might know someone who would? FARE is also looking for people to take surveys in order to grow their database of food allergy patients.

If you are pregnant or just had a baby, The Department of Pediatrics, Division of Allergy and Immunology at the University of Rochester is looking for a study participant just like you! For more information please call 585-275-8991.

Become a FARE Advocate for Research

Food Allergies Research and Education (FARE) has collected some incredible data since the launch of the FARE Patient Registry, with more than 2,000 patients enrolled. But they need to grow the registry further, because more data means greater opportunities for breakthroughs.

Add your history to our growing database of food allergy patients by completing surveys and more.

Happy Thanksgiving to you and yours!

USAnaphylaxis Summit Report 2017

Our founder, Jon Terry, attended the USAnaphylaxis Summit held in Washington, DC, sponsored by the Allergy and Asthma Network. He came away with some great information to share from leading experts in the field who identified best practices and helped develop call-to-action strategies. Jon believes some great strides are being made in anaphylaxis prevention.

US Anaphylaxis Summit Attendees

USAnaphylaxis Summit Report 2017

By Jon Terry
November 1st, 2017

This past fall I attended the USAnaphylaxis Summit meeting at the National Harbor outside of Washington, DC. The event was sponsored by the Allergy and Asthma Network, for over thirty years the leading national nonprofit organization dedicated to ending needless death and suffering due to asthma, allergies and related conditions. Five years ago, AAN invited a small group of stakeholders to Washington, DC to participate in the first USAnaphylaxis Summit and hear from leading experts, identify best practices and develop call-to-action strategies. This year the Network gathered experts in allergies, anaphylaxis and patient care to collaborate and author a journal article based on the Summit’s presentations.

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Epinephrine Commonly Administered by Unlicensed School Staff`

A study by Dr. Michael Pistiner of MassGeneral Hospital for Children found that epinephrine was often administered in schools by nonmedical staff, and sometimes to students with no known allergy. This reinforces the importance of legislation such as the Nurse Authorized Stock Epinephrine laws and the training of ALL school personnel. This is especially important for schools that do not have full-time nurses.

Dr. Michael Pistiner

Epinephrine Commonly Administered by Unlicensed School Staff

By Katherine Bortz
October 20, 2017

CHICAGO —  As many as one in five anaphylactic events among children without known allergies are treated with epinephrine administered by an unlicensed school nurse or staff member, according to a recent presentation at the American Academy of Pediatrics 2017 National Conference & Exhibition.

“School nurses can’t be everywhere all the time,” Michael Pistiner, MD MMSc, FAAP, director of food allergy advocacy, education and prevention at MassGeneral Hospital for Children, said in an interview with Infectious Diseases in Children. “Having a full-time nurse in the school would be ideal, but in some cases, that is not a possibility. It is important that epinephrine is available because we know that first-time allergic reactions do occur in schools. Having epinephrine available to treat anyone who experiences anaphylaxis is very important.”

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Peanut Allergy in US Children Up 21 Percent Since 2010

If it seems like more and more children are allergic to peanuts, you are probably correct. In a recent study, Dr. Ruchi Gupta surveyed more than 53,000 U.S. households and found that peanut allergies in children were up 21 percent and rates of tree nut, shellfish, fin fish and sesame allergies are also increasing. It was interesting to note that the risk of peanut allergy was nearly double among black children as compared to white children since 2010.However the good news is two new products were recently approved by the FDA that could potentially prevent peanut allergy by introducing peanut products to infants at an early age.

Shelled Peanuts

Peanut Allergy in US Children Up 21 Percent Since 2010

October 29, 2017

New research currently being presented at the American College of Allergy, Asthma and Immunology (ACAAI) Annual Scientific Meeting suggests that peanut allergies in children have increased by 21 percent since 2010, with nearly 2.5 percent of children in the United States potentially now suffering from the condition.

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