Family Food Allergy Foundation Memorializes Elijah-Alavi

Elijah-Alavi

The parents of three-year-old Elijah-Alavi were devasted by the loss of their son. While at preschool, Elijah, who had food allergies including dairy, was mistakenly given a grilled cheese sandwich. He suffered a fatal attack of anaphylaxis. From that tragedy Elijah’s parents embarked on a path of advocacy and education, so that other parents wouldn’t have to experience the same heartbreak. They founded the Elijah-Alavi Foundation, which includes “Elijah's Echo,” an initiative raising awareness of food allergies and anaphylaxis.    Read the article here.

Future of New York State Generic Epi Bill Uncertain

Future of New York State Generic Epi Bill Uncertain

Sometimes it takes a while for a few of our New York State legislators to “get it” when it comes to voting for issues related to allergies and how to better protect the public. But we do have many strong supporters who never give up trying. Senator Kemp Hannon and Assemblyman Tom Abinanti proposed a bill that would authorize a pharmacist to substitute an alternate epinephrine auto-injector (EAI) device containing the same active ingredients, under certain conditions. The bill got stuck in the assembly higher education committee, saying it was "held for consideration.” Don’t worry, we never give up either, and it would be wonderful if you could contact your legislator to voice your support.

Left to R: Jon Terry, Jennifer Jobrack, Senator Kemp Hannon, Kirsi Jarvinen-Seppo MD, AM Tom Abinanti.
L-R: Jon Terry, Jennifer Jobrack, Senator Kemp Hannon, Kirsi Jarvinen-Seppo MD, AM Tom Abinanti.

Progress of Hannon-Abinanti bill has been stopped for now

By Jon Terry
June 15th, 2018

Greetings. Since our Food Allergy Awareness Day ended on May 16th, important developments have taken place in Albany. The Allergy Advocacy Association's campaign to obtain passage for a new generic epinephrine law has reached a disappointing but not surprising conclusion for this year.

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E-Greetings from the Allergy Advocacy Association

June 2018

Every year we look forward to Food Allergy Awareness Day at Frontier Field. We hope you can join us on Sunday, August 12th at 12 noon where the fabulous Rochester Red Wings will be hosting the Charlotte Knights. We sincerely appreciate all that the Red Wings organization does to help our cause.

Speaking of which, it is now bee sting season and you would be amazed at the number of children as well as adults who do not know they are allergic. Even if you have been stung previously in your life with no problem, you could become allergic over time. If you are at a fitness club, outdoor pool, summer camp, daycare center or restaurant, be sure and mention to the manager that they are now allowed to stock epinephrine auto-injector devices to use in an emergency. Your Allergy Advocacy Association will provide training on how to use it and give them a prescription that can be filled at any Wegmans.

If you can help, here is a reminder of a research opportunity:

If you are pregnant or just had a baby, The Department of Pediatrics, Division of Allergy and Immunology at the University of Rochester is looking for a study participant just like you! For more information please call 585-275-8991or visit https://www.urmc.rochester.edu/childrens-hospital/allergy/food-allergy-center.aspx

Jon Terry
Founder, Allergy Advocacy Association

Allergies More Common in Kids with Autism

As if they don’t have enough to deal with already, a recent study conducted at the University of Iowa found that children with autism are more likely to have a food, respiratory, or skin allergy. The researchers surveyed 200,000 U.S. children between the ages of 3 and 17 in the years between 2007 and 2016 and found that a child with autism might have almost three times the risk of having food allergies. It is also more difficult to diagnose an allergy in kids with autism because many cannot express how they are feeling. Researchers will continue to study possible causes and if the two conditions are somehow related.

Autistc child looking through pane of glass

Allergies More Common in Kids with Autism

By Serena Gordon
June 8, 2018

Children with autism are more likely to also have a food, respiratory or skin allergy, new research suggests.

What's not clear from the new study, however, is whether there's a common cause behind these conditions.

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BMC Pediatrics Data Shows Concerns about School Labeling of Foods

Dr. Ruchi Gupta, Lurie Childrens Hospital
Ruchi Gupta, MD, MPH, Lurie Children's Hospital

Dr. Ruchi Gupta of the Robert H. Lurie Children’s Hospital of Chicago conducted a survey with parents to ask if they felt their child with food allergies was safe at school. One in five parents surveyed felt they did not. They reported they would like to see epinephrine stocked for use on any child in an emergency, school lunch menus should display allergen information, and ingredient labels on food items are needed. They also wanted to see schools provide more food allergy education for students. Hopefully parents will band together and advocate for improvements.

Study Identifies Key Food Allergy Policies in Schools to Improve Safety of Kids

www.Newswise.com
May 23, 2018

One in five parents did not feel that their child with food allergy was safe while at school, according to results of a national survey published in BMC Pediatrics. While most of the 289 parents surveyed reported that their child’s school had implemented at least one food allergy policy, they felt that more could be done. Nearly 95 percent of the parents surveyed wanted stock epinephrine to be available in school, so that a life-threatening reaction to food could be treated immediately. Most parents also felt that school lunch menus should display allergen information (65 percent reported that this was not done) and that ingredient labels on food items are needed (87 percent reported that ingredient labels were not available). They also wanted to see schools provide more food allergy education for students (72 percent reported no food allergy education for students).

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