After 12 years at the helm that included a 400% price increase in life-saving Epi-Pens plus a severe shortage, Chief Executive Officer Heather Bresch is retiring from Mylan. The company is now merging with Pfizer’s off-patent drug business to form a new company yet to be named. Read the article below about the good and the bad performance by Mylan under Bresch’s leadership. We can only hope for improvement in the future.
The Mylan Follies Starring Chief Executive Posts Closing Notice
The personal views of an activist for anaphylaxis prevention
Op-Ed opinion article written by Jon Terry August 12, 2019
This article is a summary of recent business activities involving Mylan Pharmaceuticals and Chief Executive Officer Heather Bresch. All the text material was obtained from news sources readily available on the World Wide Web. The opinions expressed by Jon Terry are solely his own and are not necessarily endorsed by the Allergy Advocacy Association.
After a long run, the final curtain has fallen for Mylan Pharmaceuticals Chief Executive Officer Heather Bresch. And she might be thinking “… not a minute too soon, thank heaven.” Rave reviews for her performance may be few and far between.
It’s every allergy parent’s nightmare to lose a child due to anaphylaxis, but in memory of her son, Georgina Cornago Cipriano is determined to advocate for legislation to prevent this tragedy from happening to another family. “Gio’s Law” would authorize certain law enforcement officers and firefighters to possess and administer epinephrine. It was recently passed by the New York State legislature and is awaiting Gov. Cuomo’s signature. Read below about Georgina’s many efforts to encourage others to get educated and be proactive in creating an allergy treatment plan for their children.
Mother Advocates for NYS Governor's Signature on Gio's Law
By Kristen Stewart July 15 th, 2019
Everything can change in an instant for anyone living with life threatening allergies. Georgina Cornago Cipriano knows this all too well — and is working hard to make sure other families don't have to experience the same heartbreak that hers has.
Her son Giovanni was a happy, healthy baby. Even as he grew and was diagnosed with allergies to peanuts, eggs, cats, dogs, mold and hay fever he remained active in school, sports and activities. He had a few encounters with peanuts over the years that resulted in vomiting, hives, and a bit of a tingly or scratchy throat but his issues resolved after a dose of an antihistamine.
It was great to have the chance to meet in person with our legislators at our Food Allergy Awareness Day, and we are gratified for all their support of our efforts. However, we remain concerned about recent actions by large pharmaceutical companies who produce epinephrine and its generics. There are reports of possible price fixing, intentional shortages, and expiration dates that are much too brief. Read below about our specific concerns and what you can do to help.
Successful Food Allergy Awareness Day Event, but the Epi Crisis Becomes More Complicated
By Jon Terry June 8th, 2019
Greetings from western New York. For the past few years, New York State lawmakers have enthusiastically sponsored Food Allergy Awareness Day at the state capitol in Albany. The Allergy Advocacy Association acted in concert with AM Thomas J. Abinanti and NYS Senator Gustavo Rivera with planning and scheduling for our event held on May 15th. We hosted more than thirty adults and children, most of them coping with life-threatening allergies each and every day. Our event featured many meetings with Senators, Assembly Members and their staffs; most lawmakers did express support for our program of action. At our exhibit booth in the Legislative Office Building, reporters for local media outlets conducted several interviews with lawmakers and visitors. In my opinion I think it was a great day! Our association firmly believes this annual event is very important for all individuals and families at risk for anaphylaxis in New York State.
One of the main reasons we are traveling to Albany is to advocate for a bill that would allow pharmacists to dispense and offer training on the lowest cost EAI device to consenting patients, unless specifically prohibited by the allergist. Kristen Stewart gives us an update on Epi-PenTM availability at pharmacies in the Albany area, which is most likely similar to Rochester. Unfortunately the news is not great as shortages remain. David Bloom’s article provides a list of alternatives to brand name Epi-PenTM so be sure to discuss them with your doctor if you are having difficulties filling your prescription.
EAI Injectors Still in Short Supply
By Kristen Stewart May 8th, 2019
The numbers are in and they aren't looking good for epinephrine auto-injector (EAI) availability.
As the EAI shortage passes the 18-month mark, many news outlets have covered the topic and moved on. At the Allergy Advocacy Association, however, we think we should be doing just the opposite. The fact that this life-saving medication is still so difficult to find even after all this time deserves more attention not less.
Toward that end, we conducted our own survey on availability. We contacted 10 pharmacies in the greater Albany area on March 7, April 11, and May 1 of this year to find out the status of their brand name and generic supplies. The news was not encouraging.
In March, four pharmacies had brand name Epi-PenTM while eight had generics. Only one had neither available.
The news was slightly better by April. One less pharmacy had the brand name but nine were carrying generics so something was available at almost every location. Unfortunately, again one pharmacy had neither — though it was a different pharmacy than the previous time indicating all were receiving some supplies and then running out again.
Educating the general public about preventing anaphylaxis is one of the main goals of the Allergy Advocacy Association. We are actively recruiting volunteers from the medical field to assist us in providing training to day care center teachers, recreation center staff, scouting organizations and school of nursing students, and are very appreciative of the volunteers we have thus far. This month we are spotlighting two of our volunteers who have had close calls with anaphylaxis themselves, so we hope this will inspire others to join us!
Epi Near You New York Volunteers Spread the Word on Anaphylaxis
By Suzanne Driscoll May 7th, 2019
Your Allergy Advocacy Association is fortunate to have so many great volunteers for our Epi Near You New York anaphylaxis emergency training program. Many of them are from the healthcare field who donate their time and talents to training a variety of audiences in the Rochester area. They educate teachers at daycare centers, nursing students, and counselors at summer camps and recreation centers on the dangers of anaphylaxis and how to administer epinephrine. This month we would like to spotlight two of our volunteers, Damien Rzepka and Sandra Glantz. If you are interested in becoming one of our ENYNY trainers, please give Jon Terry a call at 585-319-6848.