Where Have All the Epi-Pens™ Gone?

The current shortage of Mylan Epi-PensTM that has been going on for over a year is certainly very scary. This in-depth article describes the current status and provides valuable information on alternatives that are available NOW. For example, many allergists are prescribing the compact Kaléo’s Auvi-Q auto-injectors, which can be ordered via a direct delivery program and are also stocked at Walgreens pharmacies. So don’t rely on expired Epi-PensTM or just carry around one pen. And don’t go without!

Where have all the Epi-Pens gone?/Image credit: Allergy Advocacy Association

Epinephrine Auto-injector Device Shortage Update

Edited by Jon Terry
January 10th, 2019

This article is a summary of the current world-wide epinephrine auto-injector device shortage crisis. All the material utilized was obtained from news sources readily available on the World Wide Web.

Children with life-threatening allergies, and their parents, remain in a state of anxiety as an international shortage of life-saving medication continues. Epi-PensTM, the leading brand of epinephrine autoinjectors used to treat anaphylaxis, have been in short supply since November 2017. The product, which administers epinephrine intramuscularly, is simple enough to be used by parents, teachers, or friends at the first sign of anaphylaxis.

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The Holiday Gratitude List for our Association

As we wind up yet another year, it’s the perfect time to sit back and reflect on all that has been accomplished in 2018. But of course nothing would have been possible without the hard work and support we receive every day from so many in our community. Here’s our founder Jon Terry’s list of people and organizations that have been especially helpful this past year in reaching our ongoing vision of “Not another life lost to anaphylaxis - not another life lost ANY life-threatening allergies!”

The Holiday Gratitude List for our Association

SeasonsGreetings JonTerryA3 Staff 361x241
Photo Credit — Kristen Zale

By Jon Terry
December 14th, 2018

Happy Holidays! I sincerely hope all our readers have had a great year and are looking forward to 2019. At this time of year it is a regular occurrence for individuals and organizations to offer up gratitude lists of various sorts. Most lists recount events from the past year that were particularly hopeful or meaningful. That is pretty much what I want to share with all the supporters and affiliates of the Allergy Advocacy Association. I firmly believe that we do have a lot to feel grateful about. Please see my “thank you” list below.

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Allergy Advocacy Association Wins 2018 FARE Vision Award

We don’t do all our work to help prevent deaths from anaphylaxis just to win awards, but it’s certainly nice to be recognized. We are pleased to announce that our founder, Jon Terry, has won the prestigious Vision Award from FARE, the Food Allergies Research and Education organization. The award is given in appreciation for all the Allergy Advocacy Association’s efforts to pass legislation involving the stocking of epinephrine in schools, providing day care guidelines for food allergy management, and working at food allergy awareness days for legislators in Albany. You can read all the accolades here:

Allergy Advocacy Association Wins 2018 FARE Vision Award

FARE 2017 Vision Awards Display

By Suzanne Driscoll
October 17th, 2018

The Allergy Advocacy Association has won an important honor from Food Allergies Research and Education (FARE), a nationwide non-profit supporting families with life-threatening allergies. Jon Terry, the association's founder, has been awarded the FARE Vision Outstanding Advocacy Impact Award for 2018. (In 2015 our association was also awarded an important advocacy award from the Allergy and Asthma Network.)

The FARE Vision Awards recognize individuals and entities who support FARE in its mission to improve the quality of life and the health of individuals with food allergies, and to provide them hope through the promise of new treatments.

The Outstanding Advocacy Impact Award is presented to an individual or group of advocates who, through significant public action, have impacted policymakers and legislative efforts to improve access and quality of life for the food allergy community.

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Save the Date! First Annual Rochester Community Allergy Action Awards Gala!

gala newsletterRochester
Allergy Action Awards

Save the date! We are excited to announce our First Annual Fundraising Gala honoring those in our community whose contribution to research and management of allergies has been invaluable.

It will be held Thursday, November 15 from 6-9 p.m. at ARTISANworks on Blossom Road in Rochester. Read here to find out who the first well-deserved recipients of the awards will be.

We could really use your help to find sponsors for the event and items for a silent auction. Anything large or small would be most appreciated. Please contact This email address is being protected from spambots. You need JavaScript enabled to view it. to consider sponsoring or share your ideas. We sincerely thank you and will look forward to seeing you on November 15! 

Dr. John J. Condemi

We are pleased to honor Dr. Condemi with the first John J. Condemi Award for his research in anaphylaxis and working with the advocacy communities in the Rochester area.

Food Allergy Coping Teaching Supporting (FACTS)

The first annual Ruth T. Cornell Award will be given to the Food Allergy Coping Teaching Supporting network in recognition of its long term community impact in supporting families dealing with allergies.

 

Patience Plus Persistence Equals Progress!

Occasionally it’s nice to sit back and take stock of all that your association has accomplished in the recent past—and all that still needs to be worked on. Our founder Jon Terry describes what your association has been working on since 2011 but be assured we do not plan to rest on our laurels. We plan to expand our education and funding efforts with the Epi Near You New York program, and continue our work to support lower priced epinephrine auto-injectors. You can read the full article here.

Patience + Persistence = Progress!

Jon Terry holding photo of his sister, Ruth Cornell

Update on Our Latest Accomplishments and Plans for the Future

By Jon Terry
August 8th, 2018

As the summer moves quickly towards fall, September 23rd is fast approaching. On that day it will be nine years since my sister Ruth T. Cornell died from a fatal attack of anaphylaxis after being stung by a honey bee. Keeping that in mind, this seems like a good time to share with all our affiliates and supporters some ideas of where our association is headed. To do that I would like to list a few milestones we have already passed in 2018.

  • New York State approval of Epi Near You New York training program
  • Epi Entity Stocking Gift provided to Saint John Fisher College
  • USAnaphylaxis Summit Meeting in Nashville
  • Epi Entity Stocking Gift provided to Seneca Waters Council Boy Scouts of America
  • Food Allergy Awareness Day at the State Capitol in Albany
  • Epi Entity Stocking Gift provided to Girl Scouts of America Western NY
  • Pharmacists Society of the State of NY convention in Buffalo
  • Educational Gift awarded to U-R Condemi Rosenfeld Scholarship Fund
  • Educational Gift awarded FARE Hero's Walk in Buffalo
  • Food Allergy Awareness Day at Frontier Field in Rochester

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