E-Greetings from the Allergy Advocacy Association

April 2021

Greetings! Spring is here and with that Summer can’t be far behind. In this issue you will learn about New York’s Elijah’s Law, and its new details and deadlines and guidelines. You will also meet Thomas Silvera and learn about his efforts to advocate for children with food allergies and asthma in remembrance of son Elijah. Here you will learn about critical new federal legislation, the Food Allergy, Safety, Treatment, Education, and Research (FASTER) Act, H.R. 1202/S. 578 that would help improve transparency, by having sesame be labeled as an allergen on packaged foods. Finding a way to administer epinephrine in an easier and possibly more effective method could be a game changer. Learn more about the work of Aquestive and its efforts on Sublingual Emergency Epinephrine. And with the warm weather’s arrival comes BEEs (and other insects) and that means stings. In this issue you will find “How do I know if I’m having an allergic reaction (5% of the population is allergic to insects), how do I prevent stings?”

The Allergy Advocacy Association will host Food Allergy Awareness virtual-Day NY on Monday, May 24th 2021. Stay tuned for registration information and zoom details for a day of presentations and meetings for activist advocates, lawmakers and their administrators. Please help our important program of AWARENESS, ALERTNESS and ACTION by joining us in our advocacy efforts on the world-wide web. See you then.

When allergic reactions happen, learn how to take action! Our Epi Near You NY anaphylaxis emergency training program is now VIRTUAL! Our cost-free seminars provide:

  • Free state approved training presentation
  • New York State recognized certification
  • Assistance for public entities to obtain a non-patient specific prescription for emergency epinephrine.

Upcoming training seminar dates will be regularly posted on our Website.

Stay healthy and safe!

New Guidelines Detail Specifics and Deadline for NY's Elijah's Law

New Guidelines Detail Specifics and Deadline for NY's Elijah's Law

"Your voice matters, your child's voice matters, and their health matters." After a preschool ignored written and verbal instructions about his food allergies and asthma, Elijah-Alavi Affiq Thomas Silvera died in 2017. When faced with the tragedy of losing his son Elijah, Thomas Silvera embarked on a mission to help ensure that no other family would have to experience a similar tragedy. Learn more about his successful efforts to provide information and training to daycare facilities in New York and his continued work with state legislatures to spread awareness and action throughout the country.

Thomas Silvera (Elijah's Father) with Elijah's Law sign

By Kristen Stewart
April 12, 2021

"It shouldn't take a tragedy to create change and it shouldn't take another tragedy to create another change," said Thomas Silvera, Co-founder, President, and CEO of the Elijah-Alavi Foundation, a non-profit formed to encourage diverse social and equitable food allergy and asthma resources for schools in New York state and across the country.

Continue Reading

Passage of FASTER Act is Critical for Food Allergy Community!

Sometimes more is better. When it comes to food labeling, if you suffer from a potentially life threatening allergy, more information isn’t just better, it could be life-saving. That is what the new legislation — the Food Allergy, Safety, Treatment, Education, and Research (FASTER) Act, H.R. 1202/S. 578 would do. Having already passed by the Senate, this legislation would improve transparency by requiring that sesame — which is commonly used in food for flavoring — be labeled as an allergen on packaged foods. Read here to learn more about this vital legislation.

Passage of FASTER Act is Critical for Food Allergy Community!

Line of Frozen Food Display Cases

By Lisa Gable, opinion contributor —
04/06/21
The views expressed by contributors are their own and not the view of The Hill.

In the United States, 85 million people are impacted by food allergies or intolerances, of which 32 million have a potentially life-threatening condition. Sadly, they live each day with the fear and anxiety that something they eat could turn their world upside down. Always on alert, they know that consuming the wrong food or ingredient could send them straight to the emergency room or worse, could kill them.

Continue Reading

Aquestive Charts Ambitious Path Forward for Sublingual Emergency Epinephrine

When a person experiences an anaphylaxis attack, an epinephrine auto-injector is how treatment is provided. Now what if there was an easier, maybe even more effective way to administer epinephrine? That is what Aquestive Therapeutics is currently working on. Their surveys indicate that the majority of patients would be interested in replacing their current medical device with a sublingual emergency epinephrine and that it would be easier to administer during an emergency situation when compared to their current medical device.

Aquestive Charts Ambitious Path Forward for Sublingual Emergency Epinephrine

Aquestive Subingual Epinephrine product
Aquestive Subingual Epinephrine

By Dave Bloom
2021/03/26

Aquestive Therapeutics held an investor webcast yesterday to update the public on the current status of their sublingual emergency epinephrine candidate. Rather than a jab to the thigh with an auto-injector when anaphylaxis is suspected, the company hopes to offer a small strip that when placed under the tongue, releases epinephrine as it dissolves.

The opening of the webcast provided a quick tutorial on how the current parameters for emergency epinephrine have been set. Because anaphylaxis can manifest without warning, it is impossible to study the appropriate dosage to combat the symptoms without eliciting a reaction intentionally which would not be ethical. So the current dosages have been established largely by trial and observation, which would partially explain why more than one dose is sometimes needed.

Continue Reading

'Bee' Prepared for Insect Stings!

With Summer comes warm weather and with warm weather comes Bees, along with other insects, wasps, yellow jackets. Insect stings are painful, annoying and possibly life threatening. What to do if you get stung? How do I know if I’m having an allergic reaction (5% of the population is allergic to insects) and how do I prevent stings? The answers to these and other questions can be found in the following article.

'Bee' Prepared for Insect Stings!

Honey Bee (Anthidium Florentinum) on flowers

By Denise Dupras, M.D.
April 1st, 2021
From Mayo Clinic News Network (TNS)

You may not be aware of an allergy until you're stung.

Summer's the season for gardening, playing outside, back yard picnics and just enjoying the outdoors. It's also the season of bee and other insect stings. According to the American College of Allergy, Asthma & Immunology, about 5% of the population is allergic to insect stings. But most people aren't aware of their allergy until they're stung.

Continue Reading