E-Greetings from the Allergy Advocacy Association

August, 2019

End of summer greetings! For those with children in school, before you hear that wonderful sound of the school bus coming up the road on the first day, make sure you have connected with the school nurse, teacher, building principal, bus driver and coaches to inform them of your child’s allergies and what to do in an emergency. Read over carefully the doctor’s instructions given to the school nurse and make sure you are in agreement. For example, should Benadryl be given first for any signs of an allergic reaction, or epinephrine? We wish you a healthy, happy school year!

Be sure to mark your calendar for the second annual Rochester Allergy Awards Gala at ARTISANworks on October 10 from 6 p.m. to 9 p.m. We will be honoring Dr. Jeremy Thomas Cushman from the Department of Emergency Medicine at the University of Rochester Medical Center, and Jamie Kosten who saved the life of his father, a beekeeper, from a life threatening anaphylaxis response to bee stings.

The Mylan Follies Starring Chief Executive Posts Closing Notice

After 12 years at the helm that included a 400% price increase in life-saving Epi-Pens plus a severe shortage, Chief Executive Officer Heather Bresch is retiring from Mylan. The company is now merging with Pfizer’s off-patent drug business to form a new company yet to be named. Read the article below about the good and the bad performance by Mylan under Bresch’s leadership. We can only hope for improvement in the future.

The Mylan Follies Starring Chief Executive Posts Closing Notice

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Mylan CEO Heather Bresch
Illustration by bigjon

The personal views of an activist for anaphylaxis prevention

Op-Ed opinion article written by Jon Terry
August 12, 2019

This article is a summary of recent business activities involving Mylan Pharmaceuticals and Chief Executive Officer Heather Bresch. All the text material was obtained from news sources readily available on the World Wide Web. The opinions expressed by Jon Terry are solely his own and are not necessarily endorsed by the Allergy Advocacy Association.

After a long run, the final curtain has fallen for Mylan Pharmaceuticals Chief Executive Officer Heather Bresch. And she might be thinking “… not a minute too soon, thank heaven.” Rave reviews for her performance may be few and far between.

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Sesame Allergy Rates Are Increasing: Here’s What to Know

Allergies to sesame can be a tough one to deal with since it’s in so many different foods and is still not required to be listed on food labels. The ninth most common allergy, it may end up being up to individual states to pass legislation mandating sesame to be added to the list of eight allergens now required to be labeled. Meanwhile promising research is taking place by exposing children to sesame who are under six months of age and are at risk of developing this allergy, such as being allergic to another type of food.

Sesame Allergy Rates Are Increasing: Here’s What to Know

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Sesame seeds aren’t required to be listed on food labels. Getty Images

By Kristen Fischer
August 2, 2019
 

Sesame allergy is more common than most people may think, according to a new study (Prevalence and Severity of Sesame Allergy in the United States) published today in JAMA Network Open.

More than 1 million children and adults in the United States have the allergy, estimates the new data — higher than what was previously reported.

At that number, it’s the ninth most common allergy in the United States.

And that makes experts concerned about exposure risk — since only the top eight allergens are reported on food labels.

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Watch Out: Bee Sting Deaths Have Been on the Rise, CDC Data Shows

Preventing deaths from bee stings is very close to our hearts, as this is how our founder Jon Terry’s sister died. Recent studies report 1,109 deaths from bee, hornet and wasp stings during the past 17 years. And if you’ve had a severe allergic reaction to a bee sting, there is a 30-60% chance you will experience full-blown anaphylaxis the next time you are stung. If you have experienced a bad reaction, it is important to discuss with an allergist whether you should get allergy shots to help prevent anaphylaxis.

Watch Out: Bee Sting Deaths Have Been on the Rise, CDC Data Shows

Wasp on Green Plant

By Jared Gilmour
August 2, 2019

Bee, hornet and wasp stings can be deadly — and over a recent six-year period, those stings have killed more and more Americans, according to a new report released Friday.

The number of United States deaths caused by hornet, wasp or bee stings ticked up each year from 2012 to 2017, the most recent years of National Vital Statistics System data that were analyzed by the Centers for Disease Control and Prevention in the report.

Researchers did not give a reason for the steady increase in reported sting deaths over those six years, and the CDC did not immediately respond to a request for comment.

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Kirsten Gillibrand: I've Been a Terrified Parent

Right now there are quite a few Democrats running for president, but to our knowledge only one has a child with a food allergy. Senator Kirsten Gillibrand writes about her experience with her son and how grateful she is they had adequate health insurance. Sen. Gillibrand promises to continue fighting for affordable healthcare for all and to hold pharmaceutical companies accountable for unnecessary price increases.

Kirsten Gillibrand: I've Been a Terrified Parent

Kirsten Gillibrand

No family should face this impossible choice

By Kirsten Gillibrand
Wed. July 31, 2019

When my oldest son Theo was a toddler, he loved to help me cook dinner. One day he was sitting in his highchair and helping me dip slices of zucchini into egg batter for me to then bread and fry. Within seconds, his hands turned bright red and puffy. When I looked at his face and saw his cheeks and eyes had also swollen, my heart stopped. I knew he was having a severe allergic reaction.

Theo had experienced asthma attacks before, and my husband Jonathan and I were terrified, as we drove to the hospital, that Theo would keep getting worse.

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