E-Greetings from the Allergy Advocacy Association

August 2021 e-news Issue

Greetings!

Though the sun is still shining and it’s still warm outside, like it or not, summer is coming to a close and fall is on the way.

And with fall comes our annual Action Awards Celebration.

Our annual event will be held WEDNESDAY, October 20th at 7pm VIRTUALLY via our website.

This year we will honor Kirsi Jarvinen-Seppo MD, director of the Center for Food Allergy at Golisano Children’s Hospital and Maya Konoff, a college activist advocate with food allergies in downstate New York.

Both Kirsi and Maya have performed exemplary acts of service aiding individuals at risk for anaphylaxis.

So stay tuned for more information. We hope you will be able to join us for a fun-filled evening celebration honoring our award winners.

In this issue you will read more about:

  • Legislation helping those with life threatening allergies; our achievements and our goals
  • Ways and means helping consumers to lower their costs for epinephrine auto-injector (EAI) devices
  • A new study looking at the importance of accurate packaged food labeling and ways to help lessen confusion for people with food allergies
  • Research for better understanding the origin of allergies in newborns and children.

FREE is always the BEST price! You can have Anaphylaxis Emergency Training direct from the internet into your home or office at NO COST to you or your organization!

Our Epi Near You NY anaphylaxis emergency training program is now VIRTUAL!

Our association would help provide: 

  • Free state approved training presentation
  • New York State recognized certification
  • Assistance for public entities to obtain a non-patient specific prescription for emergency epinephrine

For more information on our next scheduled ENYNY seminar, visit our ENYNY page.

Best wishes to all our readers from everyone at the Allergy Advocacy Association!

A New Beginning in New York State

With the changes in New York State leadership, it is a good time to reflect on our legislative accomplishments over the past ten years and the future for other potential opportunities. Working with activists, medical professionals and legislators and their staff, the Allergy Advocacy Association has helped create a positive change for those suffering from life threatening allergies. We look forward to even more progress in the years to come.

Albany NY skyline illustration

August 19th, 2021
By Jon Terry

Dear friends;

Greetings from Brockport. I sincerely hope all readers of our monthly e-newsletter have had a safe and healthy summer.

Now that a new state governor is taking over in Albany, I think it’s a good time to review legislative achievements of activist advocates on behalf of individuals at risk for anaphylaxis and families dealing with life-threatening allergies.

During the last 10 years in NYS, the governor has signed into law five very important bills.

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‘Most People’ Find Allergen Labels Unclear as Precautionary Labelling Spreads Confusion

Have you ever read a food label, looking for information on potential allergens and weren’t sure what was and wasn’t in the item? You’re not alone and if you suffer from a life threatening allergy, that confusion could be deadly. A new study showed that less than half people found the messaging clear when it came to allergens on food labels. The importance of accurate and clear food labeling is essential to helping those with allergies navigate their food choices and to staying safe.

‘Most People’ Find Allergen Labels Unclear as Precautionary Labelling Spreads Confusion

Mother and little girl - food allergin label confusion

Katy Askew
28-Jul-2021

As a new study reveals, the majority of people find allergen labels confusing. What's the problem and what should be done?

When researchers from The Netherlands evaluated consumer understanding of allergy information on food labels, less than half of people found the messaging clear.

The study, published in journal Clinical & Experimental Allergy, involved two separate experiments with a total of 96 consumers with food allergies and 105 without.

Investigators first randomly presented 18 different food products with labels suggesting peanut was, may be, or was not an ingredient. They then presented three different formats of information: 'Produced in a Factory' and 'May contain' or 'Traces of'.

Precautionary allergen labels (PALs) were ‘especially problematic’. Also called advisory labelling, this refers to voluntary labelling to indicate allergens could be unintentionally present in a product, and thus pose a risk to susceptible consumers.

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What to Do If You Can’t Afford Epinephrine Auto-Injectors

Having an allergy can be challenging and inconvenient. When it’s life threatening it can be deadly. We know that epinephrine helps stop attacks of anaphylaxis; it’s vital that individuals at risk have access. But what do you do when the costs make that access difficult? To help with affordability the manufacturers of epinephrine auto-injectors have extended their savings program through 2021. In addition there may be other steps you could take to help lower your cost of epinephrine auto-injectors (EAI) devices.

What to Do If You Can’t Afford Epinephrine Auto-Injectors

Doctor's stethoscope on Greenback Bills

Kids With Food Allergies 3/5/21

The manufacturers of epinephrine devices have extended their U.S. savings programs through 2021.

Epinephrine is the only treatment for a severe allergic reaction known as anaphylaxis [anna-fih-LACK-sis]. It is only available through a prescription by your doctor. Each prescription comes with two auto-injectors in a two-pack.

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Researcher Wins Grant to Study Impact of Maternal Antibody on Development of Food Allergies in Infants

When it comes to food allergies, what does a mother pass on to her child? Food allergies are a major cause of neonatal morbidity. And food allergies also significantly affect young infants.

Kang Chen, Ph.D., associate professor of obstetrics and gynecology at Wayne State University School of Medicine has been awarded a $1.93 million, five-year grant by the National Institute of Allergy and Infectious Diseases (NIAID) of the National Institutes of Health (NIH) to look at this issue.

Researcher Wins Grant to Study Impact of Maternal Antibody on Development of Food Allergies in Infants

Smiling mom and baby boy

News Wire ~ 3rd Party Press Release
-2021/08/10

DETROIT — A Wayne State University School of Medicine researcher has been awarded a $1.93 million, five-year grant by the National Institute of Allergy and Infectious Diseases (NIAID) of the National Institutes of Health (NIH) to study the impact of maternal immunoglobulin D (IgD) transferred to the fetus during pregnancy and its impact on protecting against food allergies.

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