Food Allergy Advocates Celebrate Courage at Record-Setting Summit

The Contains:Courage® FARE Summit 2019 was held Nov. 1-3 at the Gaylord National Resort & Convention Center near Washington, D.C. This dynamic summit meeting drew over 1,000 participants. Tweens, teens and adults living with food allergy came together with family members, health professionals and other allies in the nation’s largest ever educational food allergy event for families.

Food Allergy Advocates Celebrate Courage at Record-Setting Summit

FARE Contains Courage Conference 2019 Poster

Edited by Toni Taylor and Jon Terry
Allergy Advocacy Association Co-Founders
November 20th, 2019

Dealing with life threatening allergies by patiently, courageously putting one foot in front of the other for the long haul, eventually achieves the desired result. This year’s Food Allergy Research and Education teen conference was a great reminder of this. There were some exciting updates in the areas of product development, advocacy, and research.

This event was a timely reminder that those dealing with anaphylaxis cannot be reduced to their allergies. In addition to courageous, they are accomplished self-advocates, creative, curious, and entrepreneurial. 

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Peanut Allergy Healthcare Costs High

Regarding health care costs, it is no surprise to any American that they continue to increase for everyone year after year. And for individuals and families afflicted with peanut allergies, insurance claims are skyrocketing even higher. Are there any new alternatives and options for prevention and treatment of anaphylaxis? The Economist Daily chart: "The Prevalence of Peanut Allergy Has Trebled in 15 Years" summarizes the trend.

Peanut Allergy Healthcare Costs High

ACAAI Scientific Meeting 2019 Poster

By Ingrid Hein
November 21, 2019

Medical claims are twice as high for people who have received treatment for a peanut allergy as for those who have not, and for people with a diagnosis of peanut allergy, those claims are 10 times as high, findings from a new study show.

"There's a high burden of disease with peanut allergy," said lead researcher Marcus Shaker, MD, from the Dartmouth Geisel School of Medicine in Lebanon, New Hampshire.

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The Prevalence of Peanut Allergy Has Trebled in 15 years…

Most of us are certainly aware that the number of people with severe food allergies is increasing rapidly. But there is hope for the future, as an advisory panel at the Food and Drug Administration (FDA) recently voted to approve a new treatment for peanut allergies in children. Called Palforzia, the drug seeks to treat peanut-allergy sufferers by exposing them to increasing amounts of pharmaceutical-grade peanut protein.

But American regulators may soon approve a treatment

Emergency Sign

The Economist
Oct 3rd, 2019

FOOD ALLERGIES have plagued humans for thousands of years. In the fifth century BC Hippocrates noted that although some people could eat their fill of cheese “without the slightest hurt…others come off badly.” The difference, he observed, “lies in the constitution of the body.”

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Action Awards Gala is BOFFO!!!

One and all had a fantastic time at the second annual Allergy Action Awards gala. With tables decorated with teal pumpkins, along with raffle baskets and goodie bags, we celebrated those who have gone above and beyond the call of duty to help keep our community safe. Read all about our award recipients and how proceeds from the event will help to continue our work on educating the community about what to do if someone is experiencing anaphylaxis. Looking forward to seeing you there next year!

Action Awards Gala is BOFFO!!!***

By Suzanne Driscoll
October 27, 2019

The Allergy Advocacy Association Awards Gala was held at ARTISAN Works in Rochester NY on October 10th. Our audience enjoyed fabulous entertainment, food and fun!

Jamie Kosten, the 2019 Ruthie T. Cornell award winner and Dr. Jeremy Cushman, the John J. Condemi award winner

We honored Dr. Jeremy Cushman, developer of the Emergency Medical Services' Syringe Epinephrine Kit at the University of Rochester Medical Center, and Jamie Kosten who saved the life of his father, a beekeeper, from a life threatening anaphylaxis response to bee stings.

Proceeds from ticket sales will be used for training personnel at day care centers, summer camps, college campuses and other public venues on how to recognize someone having a severe allergic reaction and how to administer epinephrine.

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Mylan to Pay $30 Million for Disclosure and Accounting Failure Relating to Epi-Pen©

There is justice at last, with Mylan, the maker of EpiPens, being fined $30 million for over charging Medicaid by classifying it as a “generic” drug, rather than a branded one. Also, investors were kept in the dark about Mylan’s EpiPen misclassification and the potential loss Mylan faced as a result of the pending investigation.

Mylan to Pay $30 Million for Disclosure and Accounting Failure Relating to Epi-Pen©

Mylan Corporate Headquarters

By News Wire
Washington D.C., Sept. 27, 2019

The Securities and Exchange Commission today announced charges against Pennsylvania-based pharmaceutical company Mylan N.V. for accounting and disclosure failures relating to a Department of Justice (DOJ) probe into whether Mylan overcharged Medicaid by hundreds of millions of dollars for EpiPen, its largest revenue and profit generating product. Mylan agreed to pay $30 million to settle the SEC’s charges.

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