Advocacy Is a Journey, Not a Destination!

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The Allergy Advocacy Association team continue working to create a clearinghouse for allergy and anaphylaxis information by using a program of awareness, alertness and action. We have made progress at the local, state and national level, yet ignorance and apathy remain a threat to individuals and families with life-threatening allergies. We must honor what we have accomplished and keep moving forward to raise awareness of dangerous anaphylactic reactions.

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Elijah’s Law Headway in 2 States

After the death of their three year old son, Elijah-Alavi Silvera, Thomas Silvera and his wife Dina Hawthorne-Silvera successfully spearheaded the passage of “Elijah’s Law” in their home state of New York in 2019. The law “tells early education programs in New York they must follow state food allergy guidelines and protocols to prevent, recognize and respond quickly to life-threatening anaphylactic reactions.” Now Thomas and Dina are expanding their efforts to bring “Elijah’s Law” nationwide.

Learn about their efforts in Illinois and Pennsylvania.

Elijah’s Law Headway in 2 States

Illinois flag (left) Pennsylvania seal (right)

Gwen Smith
April 26, 2021

In March 2021, Allergic Living reported that Illinois had introduced an Elijah’s Law bill. On April 22, the Illinois House voted unanimously in favor of the bill. Officially called the Childhood Anaphylactic Policy Act (HB0102), this legislation would require the state health department, in consultation with the board of education, to establish anaphylaxis policies and procedures for school districts and daycare settings.

Representative Jonathan Carroll, the bill’s sponsor, says the bill would add daycare centers to existing school food allergy policies currently required in Illinois, and tighten anaphylaxis training across school levels. The bill has now headed to the state Senate for consideration.

Thomas Silvera and his wife Dina Hawthorne-Silvera are championing the expansion of Elijah’s Law, named for their son Elijah-Alavi Silvera. The first such law passed in their home state of New York in 2019. Elijah was only 3 years old when he was fed a grilled cheese sandwich at his preschool and tragically died of an anaphylactic reaction. The center had documentation on his food allergies and asthma.

On hearing of the Illinois vote, Silvera told Facebook followers: “I’m in tears now because I know this bill will help and protect so many young children. Now, let’s get those Senate votes in.”

And there is more promising news for parents of kids with food allergies in daycare. An Elijah’s Law bill (HB 1259) was recently introduced in the Pennsylvania legislature. As with the Illinois bill, this bill contains language to on prevention, emergency treatment and stresses requirements for staff anaphylaxis training. Representative Ryan Warner, whose own son has a life-threatening food allergy, is the sponsor of that bill.

Through their Elijah-Alavi Foundation, the Silveras are working with local food allergy advocates to expand Elijah’s Law into many more states.

Gwen Smith

Related Resources:

All About Epinephrine Injectors: From When to Use to Getting It Hot, Cold or Wet
Elijah’s Law Protecting Food Allergy Kids is Official in New York State

Talking Food Allergy Podcast with Thomas and Dina Silvera

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